COMING APRIL 16, 2025

Amyloidosis Community Awareness program focusing on V122I

The Army is presenting a community Amyloidosis program on on April 16, 2025 at 2:00 P.M.. This is a free event and everyone is welcome to attend. No registration is required. We provide a free lunch and refreshments as well as an expert Amyloidosis doctor.

R. Angel Garcia D.O. from St Luke’s Mid-American Heart Institute

March 29, 2025

The Amyloidosis Army is going to Hazel Crest, Illinois Saturday April 12, 2025

The Army has been invited to the Hazel Crest Community Health Awareness Fair on April 12, 2025. We will be there with our educational table and presentation to the group about Amyloidosis and the V122I variant. Everyone is welcome to attend this free event. Thank you to the Village of Hazel Crest for including us!

March 25, 2025

THE ARMY WAS INVITED BEFORE THE FULL SESSION OF THE MISSOURI HOUSE OF REPRESENTATIVES

State Representative Anthony Ealy Jr. who is has sponsored MO HCR46 in the Missouri House making Amyloidosis Day a holiday in Missouri introduced Army Soldiers Art Still and Mike Lane to the full session of the House of Representatives to support our Amyloidosis awareness programs. Our mission was so well received we were invited by the Speaker of the House to the speaker’s podium to face the full session. What an honor and opportunity to spread our important awareness message. Rep. Ealy is committed to helping bring this awareness to the citizens of Missouri. Bravo to him for this!!!!

March 11, 2025

St. Louis Amyloidosis Support Group Meeting

Thank you to Muriel Finkel with the Amyloidosis Support groups and the great doctors at Washington University in St. Louis for allowing us the opportunity to attend such a wonderful presentation by these awesome doctors and pharma educators. No one does it better than Muriel Kudos!!!!

March 15, 2025

AMYLODOSIS ARMY GOES TO THE MISSOURI SENATE

Thank you to Senator Barbara Washington Kansas City MO for sponsoring SB 304 to make Amyloidosis Awareness Day a recognized state holiday in Missouri. The soldiers Art Still and Mike Lane went to the capitol in Jefferson City and testified for this awareness bill. Senator Washington’s staff were so good to us and the Senator invited Art & Mike to come be recognized by the full Senate that was in session. What a great reception and opportunity to spread Amyloidosis Awareness.

March 11, 2025

RARE DISEASE WEEK ON CAPITOL HILL WASHINGTON DC 2025

The Amyloidosis Army marched to Washington DC and stood strong with 1000 rare disease advocates. Art Still and Mike Lane along other Amyloidosis advocates made sure the Amyloidosis community was heard!! Thank you to Everylife Foundation and the Rare Disease Legislative Advocates for all their work and for inviting the Army to participate. Our Amyloidosis voices were heard by the elected officials. (Check Photo Tab for more pictures.)

February 24-25-26, 2025

THANK YOU KCTV-5 KANSAS CITY!!!

The Amyloidosis Army would like to thank the great folks at KCTV-5 for making us part of their 3 DEGREE GUARANTEE contest. This contest provided a substantial donation to our mission spreading awareness about Amyloidosis V122I. We want to give special thanks to Marleah Campbell Sports Director and Meteorologist Greg Bennett. Thank you!!

February 19, 2025

February 6, 2025

We would like to thank BridgeBio for the honor of inviting us to San Francisco for the ATTR Advocacy Organizations Leadership Summit. This was a great coming together of the different advocacy groups and industry to exchange ideas and goals so we can all be more effective advocates for the ATTR Amyloidosis community. This was a great summit. Thank you to Neil, Julie, Alyssa, JeShaune and Alex. Well done!

Our V122I Awareness presentation was a huge success. Thank you to all of the people who came to attend and learn about Amyloidosis and the V122I variant. This could not have been possible without the combined efforts of the Mid-States Black Nurse’s Association of Central NJ, the New Brunswick NAACP, the Edison School District and Brian Calantoni our newest foot soldier in the Amyloidosis Army.

February 2, 2025

We want to express our greatest appreciation to Dr. Renee Bullock-Palmer, MD of the Deborah Heart & Lung Center for an outstanding education on ATTR V122I Amyloidosis. What an amazing job of presenting at our Amyloidosis V122I Awareness Program in Edison NJ.

February 1, 2025

Amyloidosis Army Community Event at Herbert Hoover Middle School

– Edison, New Jersey

Angela A. Moss, MBA, RN, APN-C of the Mid State Black Nurses Association of NJ will be awarding 3 nursing Scholarships at this event!

This special gathering aims to raise awareness about amyloidosis, a rare but serious disease, particularly its impact on heart health.

We’re honored to have Dr. Renee Bullock-Palmer, MD, a leading expert in the field, as our Medical Speaker. Dr. Bullock-Palmer will provide valuable insights into amyloidosis, its symptoms, diagnosis, and the latest treatment options. Early detection is crucial, and this event is a great opportunity to learn how you or a loved one can manage or prevent this life-threatening condition.

Additionally, we are excited to welcome Art Still, the Featured Speaker and former Kansas City Chiefs player, who will share his personal experience and motivation for supporting the cause. Art's story of strength and resilience will inspire us all.

This is a fantastic chance to connect with the community, ask questions, and enjoy complimentary refreshments as we gather to raise awareness and support one another.

KC TV 5

Chiefs Hall-of-Famer helps raise awareness with Amyloidosis Army. We want to thank Marleah Campbell from KCTV-5 for supporting us and coming to cover our V122i awareness presentation.

KANSAS CITY, Mo. (KCTV) - Art Still’s biggest opponent was never on the field. It was silently lurking inside him throughout his 136 games in a Kansas City Chiefs uniform.

“You get accustomed to having pain,” the former defensive end said. “Every game, you’re beating your body up.”

That’s why, for most of his life, Art attributed his lasting joint pain, shoulder problems and heart issues to the wear and tear of a 12-year NFL career.

A routine check through the NFL Player Care Foundation this year revealed the true cause.

Thank you Dr. Zubair Shah

We want to thank Dr. Zubair Shah and his team of Amyloidosis nurses at the university of Kansas Medical Center Amyloidosis Program. They are all rocking and Amyloidosis Army hats in gratitude for all they do to help us bring awareness to the V122i community.  Dedicated to helping get Amyloidosis diagnosed and treated.

November 2024 copy of NFL Legends Community Football Newsletter

"Once a Player, Forever a Legend."

Mike Lane and Art Still, two unstoppable forces leading the charge with the Amyloidosis Army, dedicated to raising awareness, and empowering those impacted by the silent but devastating disease of amyloidosis.

Their message is clear: We fight together, because together, we are unstoppable. 💪

Amyloidosis Army featured on Fox 4 the People

Fox 4thePeople featured the Amyloidosis Army November 2024

Thank You to the Kansas City Chiefs Ambassadors

The Amyloidosis Army thanks the Kansas City Chiefs Ambassadors for the opportunity to bring our Amyloidosis V122I Awareness Program to some of the NFL'S greatest players at Arrowhead Stadium.  This is what we hope will be the kick off to spreading Amyloidosis Awareness to former and current NFL players.

#67 Art Still

"Chiefs legend and Ring of Honor inductee, Art Still #67, isn’t just a powerhouse on the field—he’s a relentless champion off it as a patient advocate and foot soldier against Amyloidosis. His fight goes beyond football, making a difference where it matters most."

Most people getting this news would go home and pull the blanket over their head and cry. Art is a soldier and fights for early diagnosis for others! The NFL should be proud!

amyloidosisarmy.org

November 14, 2024

Amyloidosis Army Community Event at Linwood YMCA

– Kansas City, MO

This special gathering aims to raise awareness about amyloidosis, a rare but serious disease, particularly its impact on heart health.

We’re honored to have Dr. Brett Sperry, MD, a leading expert in the field, as our Medical Speaker. Dr. Sperry will provide valuable insights into amyloidosis, its symptoms, diagnosis, and the latest treatment options. Early detection is crucial, and this event is a great opportunity to learn how you or a loved one can manage or prevent this life-threatening condition.

Additionally, we are excited to welcome Art Still, the Featured Speaker and former Kansas City Chiefs player, who will share his personal experience and motivation for supporting the cause. Art's story of strength and resilience will inspire us all.

This is a fantastic chance to connect with the community, ask questions, and enjoy complimentary refreshments as we gather to raise awareness and support one another.

Amyloidosis Army Gift Hats.

Amyloidosis Army Gift Hats being made for the dedicated nurses, doctors and advocates who support us patients.

Amyloidosis Army gift hats being made for the dedicated nurses, doctors and advocates.

October 9, 2024

Amyloidosis Army Community Event at Palestine Senior Activity Center

– Kansas City, MO

This special gathering aims to raise awareness about amyloidosis, a rare but serious disease, particularly its impact on heart health.

We’re honored to have Dr. Brett Sperry, MD, a leading expert in the field, as our Medical Speaker. Dr. Sperry will provide valuable insights into amyloidosis, its symptoms, diagnosis, and the latest treatment options. Early detection is crucial, and this event is a great opportunity to learn how you or a loved one can manage or prevent this life-threatening condition.

Additionally, we are excited to welcome Art Still, the Featured Speaker and former Kansas City Chiefs player, who will share his personal experience and motivation for supporting the cause. Art's story of strength and resilience will inspire us all.

This is a fantastic chance to connect with the community, ask questions, and enjoy complimentary refreshments as we gather to raise awareness and support one another.

October 16, 2024

Amyloidosis Army at the Heart Failure Community Event – St. Luke’s Hospital of KC

We are excited to announce that Amyloidosis Army will have a booth at the Heart Failure Community Event at St. Luke’s Hospital of Kansas City! This event is a wonderful opportunity to raise awareness about amyloidosis, a rare but serious disease that can affect the heart and lead to heart failure if not diagnosed early.

At our booth, you can learn about the symptoms, treatment options, and how to support those battling amyloidosis. Our team will be available to answer your questions, share resources, and provide guidance to anyone seeking more information about this condition.

Join us at St. Luke’s Hospital and take part in this important event focused on heart health and community support. Together, we can make a difference in the lives of those affected by heart conditions and amyloidosis!

August/September 2024 edition

Our Health Matters - Magazine

An article in Our Health Matters magazine highlights the efforts of Mike Lane, a dedicated patient advocate, who works tirelessly to raise awareness about amyloidosis, a rare disease. Amyloidosis occurs when abnormal proteins, called amyloids, build up in organs, leading to severe complications. Often misdiagnosed due to its rarity and complex symptoms, this condition can be life-threatening if not detected early.

Mike Lane's advocacy focuses on educating communities about the importance of early diagnosis and proper treatment. He shares his personal experiences and those of others affected by amyloidosis, emphasizing the need for better understanding and support within the healthcare system. His work aims to empower patients and bring this often-overlooked condition to the forefront of public health discussions.

KMBC - News - May 2024

In May 2024, KMBC News featured informative information about amyloidosis, a rare disease where abnormal proteins build up in organs, making it hard for them to work. Mike Lane and former Kansas City Chiefs player Art Still are working hard to spread awareness about this disease. They want people to know more about it, so they host free seminars to educate communities. These events help people learn how to recognize the signs and understand the importance of early detection. Mike and Art hope their efforts will make a big difference in people's lives.

Martin City Telegraph - September 2024

In September 2024, The Martin City Telegraph highlighted Mike Lane, a passionate advocate raising awareness for amyloidosis, a rare and often misdiagnosed disease. Lane focuses on educating communities, particularly those that are underserved, through free seminars and outreach. His personal mission is to bring visibility to amyloidosis, emphasizing the importance of early detection and treatment. Lane's efforts are crucial in spreading knowledge about the disease, especially to those who may be at higher risk but unaware of its symptoms and impacts​(Martin City Telegraph).